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A chance to tell our story

Guest Blogger, Maureen Beach, Colin’s Mom

I cannot belive it is already June!

We were so honored that Dayton Children’s has asked us to represent the hospital for Family Advocay Day in Washington D.C.. We waited until school was out to really get excited for the trip!  And now it is going to be here before we know it!

It gives us, as a family, a chance to tell our story of how important children’s hospitals are to our family and others just like us who are affected by the life long journey of childhood illness.  We are interested in how public policy impacts the accessibility, delivery and quality of children’s health care, and this trip offers us a place to share our experience.   We hope that through telling our story, those who make the policy can better understand the challenges we all face.

Colin, now a 13 year old, has Bilateral Hereditary Retinoblastoma.  His fight against cancer began at 5 months old.  Children like Colin do not really have a voice, they do not undestand the full impact of their illness.  They are not little adults, they are babies and children with special needs.  All they know is they are sick and tired.  It is our job as a community to help tell their story — to be their advocates in a complicated world.

Looking forward to DC, will update you all soon!

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We have created this blog as a way to communicate key childrens' health and safety issues to parents and other child advocates. It is managed by Dayton Children's department of marketing communications. Comments can be sent to rodneyg@childrensdayton.org.